Sorry it's been a while since I posted. Been trying to enjoy some life and forget about all this BS for a while....
Surgery is this Thursday and although I'm super anxious about it, I'm also really ready to get shit done. Have been on this annoying diet to avoid a bowel obstruction for long enough and really hoping this pain in my side that I've had for years is going to go away once they pull this demon out..... Also hoping there is a positive effect on the rest of my tumors and symptoms.
Will be in the hospital (MSK NYC) just a few days (hoping no more than 2 or 3) and then back home to recover..... My head is telling me that this surgery will be a cake walk compared to the spine and shoulder BS I went through in 2022/23. Gonna keep telling myself this and maybe it will be true. I feel like when bones and nerves are involved it's just worse.... taking out a couple of organs....meh....f that noise.... bring it on. My insurance company decided the were not going to approve the docs removing my gallbladder just because my treatment is likely going to cause gall stones/problems. They would rather pay for the emergent treatment down the line SMH. Maybe they will find "something" during the procedure and need to just take it out. Here's to hoping..... It's an easy, non-invasive procedure down the road if not, so trying not to get too pissed off about it. Will be having scans frequently to check liver tumor growth so they should see if anything start happening in the gallbladder. So this week it will be.....
terminal ileum primary removal
bowel resection including lymph nodes
appendix out
possible mesentery/peritoneum NET removal
More liver biopsies / possibly remove low hanging fruit.
Gallbladder stays put - Fuck you Horizon.
Scan and treat next few months so see how liver reacts.... If all things stable, start planning to attack the liver tumors. Will keep you all posted post op. If I can't post I'm sure Dayna will post something. Continued thanks to all of you for the messages, calls, posts etc. It really does mean a lot to both of us. See you all soon with less organs and skinnier ;) I guess maybe there will be a good bi product of all this lol. I could stand to loose a few and get in better shape.... wonder how much my intestines weigh? hmm....
looking forward to a positive update! Best to you Paul and Dayna. Prayers for your family.
Paul, good luck man. You got this.
Keeping you in my thoughts and prayers... stay strong Dayna too... we are all rooting for you and the best outcome possible...
this week is the week of the begining of your healing journey def a positive I am an optimist. I also know you long enough to say your a badass and tough as nails and will be ok. Also the fact that you have dayna in your corner as the best support system along with family and friends is a great blessing. you never know how strong u are till being strong is your only choice. lets do this you got this my prayers and positive vibes heading your way for u and dayna.
Stay Positive Paul!!! You're Strong and Young!!! Best of All you are in the right place!!! MSK is the best!!! We'll be praying for you extra hard this week. Continued Prayers Everyday!!!
Hang Tough!!!