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An honest, personal look at living with incurable Stage IV cancer — sharing updates, treatments, setbacks, hope and a dash of humor.

This blog started as a way to keep our family and friends updated after Paul was diagnosed with Stage IV Neuroendocrine Cancer. It has quickly turned into a convenient and efficient place to document the whole ridiculous, terrifying, exhausting, sometimes hopeful, sometimes infuriating ride of living with a rare, incurable cancer.

We share medical updates in normal-people language: scans, surgeries, treatments, side effects, confusing decisions, insurance nonsense, emotional spirals, good news, hard days, and the occasional pee-jug disaster… because the only way to get through this is by embracing the humorous moments.

​We are obviously not doctors. We're just sharing what we’re learning, what we’re going through, and how we’re trying to keep living life in between the hard times.​ Our hope is that this blog keeps our closest humans in the loop, helps anyone dealing with NET Cancer feel a little less alone, and gives an honest peek into what this life can look like — the scary parts, the funny parts, the grateful parts, and the parts we’d all very much like to return to sender.

Thanks for being here, sending love and riding this rollercoaster with us.

🖤 Paul + Dayna
 

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IMPORTANT DISCLAIMER : We are not doctors. We are just normal, everyday people who are sharing what we’ve experienced, in hopes it might help someone else. Nothing in this blog, or anywhere on this website, should be substituted for professional medical advice. Perform your own fact-checks, make sure to conduct your own research, and consult with the best doctors you can find. It’s also INCREDIBLY important to note that no two NET Cancers are the same, and just because something did or did not happen to Paul, or does or does not work for Paul, doesn’t mean it will or will not work/happen the same way for someone else. Everyone is their own unique case, and every body responds differently to the cancer itself, as well as to the treatments. If you have a NET, please do NOT jump to conclusions based on Paul’s story. We’ve read many stories like Paul’s, but we’ve also read many miracle stories. We strongly encourage you to take this blog as an individual case study, and not as a prognosis for your own health.

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